Thursday, October 27, 2016

PatientsLikeMe Launches Virtual Trial for ALS Patients

PatientsLikeMe began as a website for people living with ALS to openly share their experiences with each other and study alternative and off-label treatments. Vice President of Innovation Paul Wicks, PhD, said the company’s research focus gave ALS patients a science-based platform to monitor themselves, get ideas from other patients, and play a more active role in their own healthcare. That focus has also helped the company produce more than 30 published research studies on the condition, including a 2011 observational study in Nature Biotechnology that refuted the results of a 2008 clinical trial on the efficacy of lithium carbonate on ALS. More recently the company has worked with Bedlack to study the frequency of ALS plateaus and reversals. Findings from that study were recently published online and in the March 2016 print edition of the journal Neurology.

“The work we’re doing with the Duke ALS Clinic continues our focus on science that is driven by and for the unanswered needs in the ALS community,” Wicks said. “If we can harness the power of online technologies to more rapidly conduct trials, we’ll be able to conduct many more experiments with patients from around the world.”

Anyone taking Lunasin outside of the Lunasin Virtual Trial is invited to separately track their experiences on PatientsLikeMe at

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